If you came here accidentally and originally were looking on information about GAMT then check out
http://mommyklor.blogspot.com/
That's a really nice blog by a mom with a little son having GAMT.
She writes about her son's development and his therapies.
It's really worth reading!
My son is currently 21 months and he has creatine transporter deficiency as well. We're working with an OT, PT, SLP and Developmental Therapist (DT?), the progress is there but it is slow. He is not yet walking but we are hopeful that he will walk in the next 6 months and he is non verbal. I've just started a blog myself, feel free to follow me.
ReplyDeleteHi p.,
ReplyDeletejust to encourage you: My son has started walking with 2 1/4 years. By now he is really walking very well!